sara-pezzini Posted May 9, 2017 Share Posted May 9, 2017 When is the appointment? You're doing so great!! I'm so happy for you.... or should i say yuo lol Link to comment
Seraphim Posted May 9, 2017 Author Share Posted May 9, 2017 When is the appointment? You're doing so great!! I'm so happy for you.... or should i say yuo lol Hahahaha the 17th at 12:30. Link to comment
sara-pezzini Posted May 9, 2017 Share Posted May 9, 2017 Okay! I'm very curious what he will say!! Link to comment
Seraphim Posted May 18, 2017 Author Share Posted May 18, 2017 So I am in a remission. The specialist thinks I have a 30% to 50% chance of going out of remission in my life but he can't say when and when it happens he will deal with it by putting me back on Tegretol. Link to comment
Seraphim Posted May 18, 2017 Author Share Posted May 18, 2017 Today is my very first day without medication in a year !!! Link to comment
sara-pezzini Posted May 18, 2017 Share Posted May 18, 2017 Congratulations!! Woohoo! that's a big reason to celebrate!! Hope to be able to say the same in a few months! And what the specialist said is basically what you can think off yourself as well! But fingers crossed that soon this will all be a bad memory!! Hugs! Go party! Link to comment
Seraphim Posted May 18, 2017 Author Share Posted May 18, 2017 Congratulations!! Woohoo! that's a big reason to celebrate!! Hope to be able to say the same in a few months! And what the specialist said is basically what you can think off yourself as well! But fingers crossed that soon this will all be a bad memory!! Hugs! Go party! And this weekend is a holiday weekend!!! Wooo!! I can have a drink! Link to comment
sara-pezzini Posted May 18, 2017 Share Posted May 18, 2017 Oh that will be one great drink!! Lol enjoy it! How are you sleeping now? Link to comment
Seraphim Posted May 18, 2017 Author Share Posted May 18, 2017 Oh that will be one great drink!! Lol enjoy it! How are you sleeping now? I still wake up most of the time but I always did that anyway . I'm an extremely light sleeper normally and I will wake up and on average about 10 times in a night . Link to comment
sara-pezzini Posted May 18, 2017 Share Posted May 18, 2017 Yeah me too.... except on the meds, then i sleep like a log and don't wake up at all.....i noticed when i was almost off them that i have to learn to sleep again but now since i needed to up the dose again, I'm out like a log..... I rather wake up 10 times!! Link to comment
Seraphim Posted May 18, 2017 Author Share Posted May 18, 2017 Yeah me too.... except on the meds, then i sleep like a log and don't wake up at all.....i noticed when i was almost off them that i have to learn to sleep again but now since i needed to up the dose again, I'm out like a log..... I rather wake up 10 times!! I have always since childhood been an insomniac. Ugh. But at least waking up 10 times at night I'm not chewing through my own teeth. Link to comment
sara-pezzini Posted May 18, 2017 Share Posted May 18, 2017 You're on the way to get your life back! Without the sleep haha Pretty sure you have much more energy as well! And in a few months if all goes well you'll have your memory back as well Link to comment
Seraphim Posted May 18, 2017 Author Share Posted May 18, 2017 You're on the way to get your life back! Without the sleep haha Pretty sure you have much more energy as well! And in a few months if all goes well you'll have your memory back as well I have a ton of energy now and memory is working it's way back. Yay! Link to comment
Seraphim Posted July 6, 2017 Author Share Posted July 6, 2017 My memory seems back to normal and my energy is back to normal ! Sometimes I will get a little burning but other than that no real pain ! Link to comment
Seraphim Posted July 9, 2017 Author Share Posted July 9, 2017 I am having some mild pain today. I think it is a response to stress. No no no no.... I have been so happy the past few months. Link to comment
Seraphim Posted July 9, 2017 Author Share Posted July 9, 2017 Phew. Took my clonazepam and it went away. Clonazepam also has non-seizure properties. Link to comment
Seraphim Posted July 10, 2017 Author Share Posted July 10, 2017 Oh no! Fingers crossed! Thankfully, it stopped🙌🏻 Link to comment
Seraphim Posted August 22, 2017 Author Share Posted August 22, 2017 Have had pain on and off since my mom's surgery. Too much stress. Link to comment
sara-pezzini Posted August 23, 2017 Share Posted August 23, 2017 Oh no! Yeah stress is a really big trigger but that's easy said.... trying to keep calm in a situation like that is impossible. Hope it goes away again soon! Link to comment
Seraphim Posted August 23, 2017 Author Share Posted August 23, 2017 Oh no! Yeah stress is a really big trigger but that's easy said.... trying to keep calm in a situation like that is impossible. Hope it goes away again soon! Yes ,I really hope it goes away. I really hope she decides not to do the other knee because I'm not going through this crap . Link to comment
sara-pezzini Posted August 23, 2017 Share Posted August 23, 2017 Fingers crossed!! Stress is so bad yet we can't do anything really to prevent it.... try to stay calm but that really doesn't work all the time! Hope it'll go soon and you won't need meds again! Link to comment
Seraphim Posted August 24, 2017 Author Share Posted August 24, 2017 Fingers crossed!! Stress is so bad yet we can't do anything really to prevent it.... try to stay calm but that really doesn't work all the time! Hope it'll go soon and you won't need meds again! Pain is still continuing about every second day about it flares up . I really don't want to have to go on meds again . Link to comment
Seraphim Posted September 26, 2017 Author Share Posted September 26, 2017 I have had shooting pain through my optical nerve today and my scalp is on fire . It felt like electric bolts were coming out my eye and it was watering like crazy . But now it's gone and so was the burning in my scalp . My eye is still twitching though. Link to comment
sara-pezzini Posted September 26, 2017 Share Posted September 26, 2017 Was there anything that could have set it off? Stress? Something happened? That's scary! Try to relax, do some breathing exercises to calm your body down, that's basically all you can do...... maybe a long hot bath! Link to comment
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