Seraphim Posted January 15, 2017 Author Share Posted January 15, 2017 OK ,I have been in a ridiculous amount of pain for the past two weeks . Link to comment Share on other sites More sharing options...
sara-pezzini Posted January 15, 2017 Share Posted January 15, 2017 Oh awful! I'm having pains as well. The electric shocks again. They need to find something definite for this pain asap! Link to comment Share on other sites More sharing options...
Seraphim Posted January 15, 2017 Author Share Posted January 15, 2017 I just can't go up in medication or I can't drive my son to school or go to work . It's ridiculous I don't know what to do at this point . Other than take the pain for the next year until we can clear up a lot of things . Will they still be able to do your surgery ,Sara? Link to comment Share on other sites More sharing options...
sara-pezzini Posted January 15, 2017 Share Posted January 15, 2017 Yes they can, in fact it's easier for me to tell now right away if the surgery has worked! So in that sense i hope the pain stays till then.....otherwise I'm weaned of the meds in 6 weeks time....or more since i take so much. You basically can't live with this pain but you can't with the meds either which is why i chose this surgery to have a hope of a somewhat normal life afterwards.....with still a tumor in my head though..... Link to comment Share on other sites More sharing options...
Seraphim Posted April 4, 2017 Author Share Posted April 4, 2017 I am totally off Lyrica now. I have more energy ! I'm going to start to try weaning off my medication now. You need teeth to eat with my crumbling teeth I wont allow. So after next week I will start weaning the Tegretol. Link to comment Share on other sites More sharing options...
sara-pezzini Posted April 4, 2017 Share Posted April 4, 2017 Good you're off the lyrica now! I hope the tegretol will go well too. Did you mention the cannabis already? It may be a good option... Link to comment Share on other sites More sharing options...
Seraphim Posted April 10, 2017 Author Share Posted April 10, 2017 Completely off Lyrica and down to 700 mg of Tegretol. In another week I can go down to 600 mg . I'm hoping for 400 mg or even 200 mg. No pain yet! Link to comment Share on other sites More sharing options...
Seraphim Posted April 10, 2017 Author Share Posted April 10, 2017 Getting off the Lyrica I have also started to dream again. I have had almost no dreams in a whole year at least none that I remember . Now I'm starting to dream every night again . Link to comment Share on other sites More sharing options...
sara-pezzini Posted April 10, 2017 Share Posted April 10, 2017 Woohoo!! You go! That's awesome! And yes I've heard that more in my group that that happens with dreams..... I didn't dream as much either as i used to but now it's increasing as well.... Link to comment Share on other sites More sharing options...
Seraphim Posted April 17, 2017 Author Share Posted April 17, 2017 I am at 600 mg now and no pain but feel agressive though. Link to comment Share on other sites More sharing options...
Seraphim Posted April 18, 2017 Author Share Posted April 18, 2017 No pain yet! So I will give it another week and go to 500 mg. Link to comment Share on other sites More sharing options...
WithLove Posted April 18, 2017 Share Posted April 18, 2017 I had one medication I was on that gave me night terrors. It was awful. I'm on something different now, but I still dream almost every night. I remember all mine, too. Link to comment Share on other sites More sharing options...
Seraphim Posted April 18, 2017 Author Share Posted April 18, 2017 I had one medication I was on that gave me night terrors. It was awful. I'm on something different now, but I still dream almost every night. I remember all mine, too. Yeah, I have not had a dream in a year that I remember plus no waking up at night. Now as my medication reduces I'm back to insomnia . Bleck!! Link to comment Share on other sites More sharing options...
Seraphim Posted April 18, 2017 Author Share Posted April 18, 2017 As a plus though I have more energy than just to sit on my sofa . Link to comment Share on other sites More sharing options...
Seraphim Posted April 30, 2017 Author Share Posted April 30, 2017 Tomorrow I go to 400 mg. Link to comment Share on other sites More sharing options...
sara-pezzini Posted April 30, 2017 Share Posted April 30, 2017 That's awesome!! I am down to 400 tegretol and 600 gabapentin as of yesterday.... and in 2 days or so i will take another 300 gabapentin off..... When can you lower again? Link to comment Share on other sites More sharing options...
Seraphim Posted April 30, 2017 Author Share Posted April 30, 2017 I am doing it about every 3 weeks. Very slow so I don't upset my brain too much. Don't you just feel so much better?! Link to comment Share on other sites More sharing options...
sara-pezzini Posted April 30, 2017 Share Posted April 30, 2017 Oh yes so much better! The fog is clearing and i feel i have more energy, i just am not able yet because i have no stamina whatsoever.... You're right to lower so slowly, i can go faster than that because the problem is fixed and if all goes on this way then I'm off the meds somewhere in the next week after the next weekend..... Hallelujah!! Lets hope we can soon say we both HAD tn!! Link to comment Share on other sites More sharing options...
Seraphim Posted April 30, 2017 Author Share Posted April 30, 2017 I hope so!!!! My migraines started back with a huge increase so I guess medication was controlling that as well. But I have way more energy . And hopefully my memory comes back soon ! Link to comment Share on other sites More sharing options...
sara-pezzini Posted April 30, 2017 Share Posted April 30, 2017 Sleep is getting more difficult but i rather have that than the meds...... I notice a change in my memory but I'm not there yet.... supposed to take a couple of months.... Link to comment Share on other sites More sharing options...
Seraphim Posted April 30, 2017 Author Share Posted April 30, 2017 Yes, I am back to insomnia but that's fine because at least I can wake up and not chew through my own teeth . Everything is a trade-off right ? Link to comment Share on other sites More sharing options...
sara-pezzini Posted April 30, 2017 Share Posted April 30, 2017 Exactly, I'm happy to go pee two or three times a night! It's also much easier to wake up in the morning.... Link to comment Share on other sites More sharing options...
Seraphim Posted May 9, 2017 Author Share Posted May 9, 2017 I am at 200 mg as of yesterday! No pain just the odd tingly itchy feeling in the nerve. Link to comment Share on other sites More sharing options...
sara-pezzini Posted May 9, 2017 Share Posted May 9, 2017 Super!! I will keep my fingers crossed Link to comment Share on other sites More sharing options...
Seraphim Posted May 9, 2017 Author Share Posted May 9, 2017 Today I call my specialist for a follow up appointment. Link to comment Share on other sites More sharing options...
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