sara-pezzini Posted January 30, 2018 Share Posted January 30, 2018 How are you today? Link to comment Share on other sites More sharing options...
Seraphim Posted January 30, 2018 Author Share Posted January 30, 2018 How are you today? Hey Sara! thankfully the flare ended!! They typically last 3 or 4 days and it stopped! Woo! Link to comment Share on other sites More sharing options...
sara-pezzini Posted January 30, 2018 Share Posted January 30, 2018 So good to hear!! What a relief! 1 Link to comment Share on other sites More sharing options...
Seraphim Posted June 4, 2018 Author Share Posted June 4, 2018 Having a flare starting up. Link to comment Share on other sites More sharing options...
sara-pezzini Posted June 4, 2018 Share Posted June 4, 2018 Oh no!! That's scary! Are you going through some stress perhaps? Hope it goes away soon.... This is also what I'm terrified of, that it will come back.... Link to comment Share on other sites More sharing options...
Seraphim Posted June 4, 2018 Author Share Posted June 4, 2018 Oh no!! That's scary! Are you going through some stress perhaps? Hope it goes away soon.... This is also what I'm terrified of, that it will come back.... Yes, it is a busy stressful period right now. Link to comment Share on other sites More sharing options...
sara-pezzini Posted June 4, 2018 Share Posted June 4, 2018 that was the case in January as well, stress is a major trigger.... if only we could avoid it forever... Link to comment Share on other sites More sharing options...
Seraphim Posted June 13, 2018 Author Share Posted June 13, 2018 Another flare today. 😫 Link to comment Share on other sites More sharing options...
sara-pezzini Posted June 13, 2018 Share Posted June 13, 2018 Ah no!! That sucks... I'm sorry! Link to comment Share on other sites More sharing options...
Seraphim Posted June 13, 2018 Author Share Posted June 13, 2018 Ah no!! That sucks... I'm sorry! It seems to be gone for now. Thankfully! But 17 more days till my holidays ! Link to comment Share on other sites More sharing options...
Seraphim Posted July 2, 2018 Author Share Posted July 2, 2018 Having another flare because of the extreme heat. Link to comment Share on other sites More sharing options...
sara-pezzini Posted July 3, 2018 Share Posted July 3, 2018 It's hot here as well so i was very scared that it would happen to me too but thank God it hasn't.... Hope it goes away again soon!! 1 Link to comment Share on other sites More sharing options...
Seraphim Posted July 18, 2018 Author Share Posted July 18, 2018 I have been feeling pain daily for a few months now. I really don’t want to go back to meds . I’m not desperate at this point but I really don’t want to be either . Link to comment Share on other sites More sharing options...
sara-pezzini Posted July 18, 2018 Share Posted July 18, 2018 Oh no that absolutely sucks! I can imagine how you feel, hopefully it's because of the warmer weather and it subsides again but i can understand the fear you have and the aversion against the meds! Link to comment Share on other sites More sharing options...
Seraphim Posted October 8, 2018 Author Share Posted October 8, 2018 Last night the CN Tower was lit up for Trigeminal Neuralgia awareness!!! I was driving through Toronto last night on my way home and saw it lit up ! Link to comment Share on other sites More sharing options...
sara-pezzini Posted October 9, 2018 Share Posted October 9, 2018 Wow!! Here in Holland there is zero attention for trigeminal neuralgia awareness day, although i remembered on my own... This needs to be a worldwide thing and there needs to be more awareness to maybe eventually find a cure for everyone! I am still terrified that it'll come back one day, i think i will always live with that fear 1 Link to comment Share on other sites More sharing options...
Seraphim Posted October 9, 2018 Author Share Posted October 9, 2018 Wow!! Here in Holland there is zero attention for trigeminal neuralgia awareness day, although i remembered on my own... This needs to be a worldwide thing and there needs to be more awareness to maybe eventually find a cure for everyone! I am still terrified that it'll come back one day, i think i will always live with that fear I was so excited to see it! Link to comment Share on other sites More sharing options...
Seraphim Posted October 9, 2018 Author Share Posted October 9, 2018 http://i701.photobucket.com/albums/ww18/goodgirl_015/732C7E9D-697F-4D9A-8CDD-F52DE827AAA9_zpsule4mtto.jpeg Link to comment Share on other sites More sharing options...
sara-pezzini Posted October 9, 2018 Share Posted October 9, 2018 Wow that's so very special!!! Yes that would absolutely give me chills if I saw that Link to comment Share on other sites More sharing options...
Seraphim Posted December 16, 2018 Author Share Posted December 16, 2018 I am happy to still be in remission! Link to comment Share on other sites More sharing options...
sara-pezzini Posted December 16, 2018 Share Posted December 16, 2018 Ooh scary, i saw the thread was updated and i got worried!! Glad to read you're still doing well!!!!! Me too, for 13 months now already and 11 months free of meds! Will be a great Christmas for both is us, something to be really grateful for!! Xxx Link to comment Share on other sites More sharing options...
Seraphim Posted December 16, 2018 Author Share Posted December 16, 2018 Ooh scary, i saw the thread was updated and i got worried!! Glad to read you're still doing well!!!!! Me too, for 13 months now already and 11 months free of meds! Will be a great Christmas for both is us, applying to be really grateful for!! Xxx I am so glad you are still well , Sara!! Yes, I have no twinges at all !! I am so so happy. It will be a blessed Christmas! Link to comment Share on other sites More sharing options...
sara-pezzini Posted December 16, 2018 Share Posted December 16, 2018 Oh so good to hear!!! Been reading back our threads a while ago and unbelievable what we've been through! No more taking things for granted, feel blessed every day, especial given how extremely difficult it is to get rid of this pain and how it doesn't happen more often than that it is successful! Link to comment Share on other sites More sharing options...
Seraphim Posted December 16, 2018 Author Share Posted December 16, 2018 Oh so good to hear!!! Been reading back our threads a while ago and unbelievable what we've been through! No more taking things for granted, feel blessed every day, especial given how extremely difficult it is to get rid of this pain and how it doesn't happen more often than that it is successful! Exactly. Be so happy for every single minute without that pain. Link to comment Share on other sites More sharing options...
sara-pezzini Posted December 16, 2018 Share Posted December 16, 2018 Indeed! But also still terrified, i don't know what i would do if it ever came back, last year i thought oh a year without pain sounds so wonderful but it is too short, a year is nothing! Link to comment Share on other sites More sharing options...
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